Please use this identifier to cite or link to this item: http://hdl.handle.net/11054/1149
Title: No one said he was dying: families' experiences of end-of-life care in an acute setting.
Author: Odgers, Jade
Penney, Wendy
Fitzpatrick, Denise
Wong Shee, Anna
Issue Date: 2018
Publication Title: Australian Journal of Advanced Nursing
Volume: 35
Issue: 3
Start Page: 21
End Page: 31
Abstract: Objective: To explore the family’s experience of end-of-life care for their dying family member during the last few days of life in an acute rural hospital. Design: Interpretive design using qualitative methods, including 1:1 semi-structured interviews. Setting: The study was undertaken in a large regional health service in Victoria. Subjects: Twelve relatives who were next of kin of people who died between 1 January 2012 and 30 June 2013 in an acute ward at the health service agreed to participate in the study. Main outcome measure: Families’ perceptions of end-of-life care for their dying family member. Results: Data analysis identified five themes that were grouped into two general dimensions − communication (guidance for family member’s role in end of life care, the family’s preparation for death, the dying experience) and care and support (the hospital care experience, follow-up after death). Conclusion: A lack of open and candid communication hindered family members’ engagement in decision-making and involvement in their loved ones’ last days of life. The absence of formal processes for end of life (EOL) care planning resulted in families being unprepared for what they perceived as their family member’s ‘sudden death’.
URI: http://hdl.handle.net/11054/1149
Resource Link: http://www.ajan.com.au/Vol35/Issue3/3Odgers.pdf
ISSN: 0813-0531
Internal ID Number: 01138
Health Subject: ADVANCE CARE PLANNING
TERMINAL CARE
CARE OF THE DYING MANAGEMENT PLAN (CDMP)
DEATH, SUDDEN
DECISION MAKING
FAMILY INCLUSIVE PRACTICE
COMMUNICATION
FAMILY
FOLLOW-UP STUDIES
VICTORIA, AUSTRALIA
Type: Journal Article
Article
Appears in Collections:Research Output

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